Local Down Syndrome Organizations: Down Syndrome Prenatal Outreach Program

February 8, 2013 in Resources

Down Syndrome Pregnancy also hosts a medical outreach program for local organizations who want to provide resources for medical providers and support to expectant parents.

The Down Syndrome Prenatal Outreach Program was launched by Canister in 2008 and has been used by over 50 local Down syndrome organizations nationwide. The program is now part of the National Center for Prenatal and Postnatal Down Syndrome Resources and is available for any local Down syndrome organization to use.

The first purpose of the Down Syndrome Prenatal Outreach program is to raise awareness among medical professionals about available resources and support. This is best done by establishing relationships of trust between local Down syndrome organizations and medical providers; distributing materials; doing presentations; and maintaining the professionalism of local organizations.

The Down Syndrome Prenatal Outreach program generally consists of a parent or staff contact for each OB/GYN group in the region. The Down Syndrome Representatives replicate the model of a pharmaceutical representative by visiting the OB/GYN offices quarterly to build the relationships, distribute materials, and update the stock of materials as needed. Further, the Down Syndrome Representatives offer business cards with contact information to the medical professionals and are available via telephone calls or in person.

Down Syndrome Representative training is offered to so that Down Syndrome Representatives understand the organization and focus of the Down Syndrome Prenatal Outreach program. The training also instructs parents and staff about how to act as representatives of local organizations.

To view the training course and all the downloadable files, please refer to the Down Syndrome Prenatal Outreach Program page.

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