Since May 1, we have raised $8100 towards our goal of earning $10,000 to provide “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome,” to prenatal genetic counselors nationwide. This Mother’s Day campaign was launched with a $5000 contribution from a donor who wasn’t a large organization, a corporation, or a famous philanthropist. This donor was a mom and dad who received the Lettercase book from the geneticist after their baby was diagnosed with Down syndrome and who used “Diagnosis to Delivery” and the Baby Center board throughout the pregnancy. This mom is the same mom who said these resources were her lifelines during her pregnancy that gave her hope and that she wished every prenatal genetic counselor also had a copy of “Diagnosis to Delivery” to give their patients.
This is also a mom I was able to meet in person in the Newborn Intensive Care Unit just days after her son’s AV repair a couple of months ago. I was able to hug her and rub the head of her sweetly resting boy with the tubes still attached to his resilient body. Her son is regaining his strength after surgery and so has his mom as she put into action this effort to help other families.
Since that first donation, other moms and dads have joined us in this campaign … and shared their stories with us along the way. Some of them had a wonderful experience upon receiving a prenatal diagnosis and were given support and information immediately from a compassionate healthcare provider. They want to make sure other families get the same. Others received little to no information and felt abandoned and alone. They want to make sure no other mom or dad ever feels that way.
This is the power of moms: to move past the initial shock and grief of receiving a prenatal diagnosis of Down syndrome and launch efforts to support others. To give support, compassion, understanding … and then hope for a beautiful future.
So, our mom who provided the initial funding has once again generously offered in this last week of the campaign to match donations until we reach our goal on Friday, May 31. Please join us helping her to give a lifeline today.