News archives

New healthcare guidelines (pediatrics)

July 29, 2011 in Future, Health Issues, Medical Provider, News, Resources

The American Academy of Pediatrics has released new guidelines for pediatricians who have patients with Down syndrome. These guidelines are updated from those provided in our pregnancy book, so expectant parents should have a copy of the new guidelines and provide a copy to their pediatrician if he or she does not have them.

You can download a PDF of the new guidelines here: LINK HERE.

Happy World Down Syndrome Day

March 21, 2011 in Emotions, Events, News

March 21st is World Down Syndrome Day.  On this the 21st day of the third month (3/21, trisomy 21), we celebrate the lives of our loved ones with Down syndrome. We know pregnancy post-diagnosis can be an emotional time, but today is the day to find the joy and celebration for the member of your family about to join you. I love Conny Wenk’s photos of Julia and Peter, who were so excited as they waited for their little one with Down syndrome to be born. You can see the love and the laughter above.

The internet is abuzz with celebration – video clips, exclamations, excitement.  I will search around today and add to this post the interesting and inspiring snippets I find. Share here if I miss any! 

Of course we think a great way to celebrate would be to tell our expectant parents here or on our discussion board how much your child means to you – our families find so much hope from your stories.  Also, a donation will help us in our efforts to help expectant families.  If there is a perfect day to donate, today would be that day!

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