Events archives

Preparing for World Down Syndrome Day 3/21/2013

March 11, 2013 in Events, Resources

On March 21 (3/21), the Down syndrome community will be celebrating World Down Syndrome Day. This date is significant because it represents three copies of the 21st chromosome, and you can find out more at World Down Syndrome Day (international website). Some families take this opportunity to share information about Down syndrome with their local communities, schools, churches, doctors, or friends and family. Ideas include offering presentations, sharing materials about Down syndrome, posting links on social media, or enjoying reading a new blog — whatever is most comfortable.

School presentations: Down Syndrome Pregnancy offers a range of presentations for schools that can be helpful in preparing older siblings and their friends for the birth of a baby with Down syndrome.

Medical Presentation: Down Syndrome Pregnancy also offers a short 15-30 minute presentation for volunteers to share with medical providers on the best practices for delivering a Down syndrome diagnosis.

Prenatal Down Syndrome Resources: While all of our materials are available for free, some expectant parents like to make sure that their medical providers have printed resources on hand in case another family in the office receives a diagnosis of Down syndrome. You can order print copies of “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome” and “Your Loved One is Having a Baby with Down Syndrome” from Woodbine House, and you can order “Understanding a Down Syndrome Diagnosis” and “Delivering a Down Syndrome Diagnosis” from Lettercase.

Blogs:

You can also see a range of blogs that have a positive connection to Down syndrome at Down Syndrome Blogs by the T21 Writer’s Alliance. The blogs are organized by category so that you can select which blogs would be most interesting to you.

Video and Social Media:

In the past few months, the Down Syndrome Guild of Greater Kansas City has released a wonderful short film featuring people with Down syndrome and their friends discussing Down syndrome, friendship, and proper language. This is another great tool to share with friends and classrooms to introduce Down syndrome:

The International Down Syndrome Coalition also shared a World Down Syndrome Day video this past week that features images of people with Down syndrome and features the song “Who I Am” written and sung by Sarah Conant.

Happy World Down Syndrome Day

March 21, 2011 in Emotions, Events, News

March 21st is World Down Syndrome Day.  On this the 21st day of the third month (3/21, trisomy 21), we celebrate the lives of our loved ones with Down syndrome. We know pregnancy post-diagnosis can be an emotional time, but today is the day to find the joy and celebration for the member of your family about to join you. I love Conny Wenk’s photos of Julia and Peter, who were so excited as they waited for their little one with Down syndrome to be born. You can see the love and the laughter above.

The internet is abuzz with celebration – video clips, exclamations, excitement.  I will search around today and add to this post the interesting and inspiring snippets I find. Share here if I miss any! 

Of course we think a great way to celebrate would be to tell our expectant parents here or on our discussion board how much your child means to you – our families find so much hope from your stories.  Also, a donation will help us in our efforts to help expectant families.  If there is a perfect day to donate, today would be that day!

Down syndrome Blogs