The Shape of the Eye by George Estreich is one of my favorite books and I recommend it highly for those who have a loved one with Down syndrome (or will soon!) and for anyone who loves books. I wanted to have written a beautiful book review worthy of his work, but I find that the time eludes me. However, Lisa Morguess has written a lovely review for you to enjoy on her blog Turn the Page, and as a bonus has an interview with the author on her personal blog Life as I Know It. Read Lisa’s review and George’s interview, buy the book and devour it, and when you love it as much as we do, vote for The Shape of the Eye in the Oregon Creative Non-Fiction category.
Lisa Morguess’ review: HERE
Lisa’s interview with George Estreich: HERE
Buy the Shape of the Eye: HERE
What resources are there for dads? How is the prenatal experience different for them (beyond the biology)?
Competitive runner and FBI agent Heath White describes how he and his wife struggled with a prenatal diagnosis of Down syndrome and then how his life changed after Paisley was born. They have run a symbolic 321 miles together, and Heath says, “I’m always gonna be there to make sure she gets to the finish line.”
Like Heath, I remember being afraid of someone teasing my son and being worried about raising him for the rest of my life. Then I remember coming to the realization, like Heath, that my son was becoming so independent I might not get to raise him for the rest of my life. Let us know, how much of their experience sounds familiar to you? What’s different about your story? Please also share any other stories or blogs you like about dads.
Another video from a father:
Expectant parents, this video treasure has been shared throughout the on-line Down syndrome community. A father speaks from the heart about those early feelings connected with hearing the news, and the progression of perspective, feelings, and knowledge. It takes only a few moments, but we think it will help you see a glimpse of the future:
(Please note that in the video the stat on divorce seems to be inadvertantly misquoted. Research does show that couples with a child with Down syndrome divorce at a lower rate than couples with typical children, but not as low as noted in the video.)
There is also a national group specifically for dads called (“Dads Appreciating Down Syndrome.”.), and about 55 local groups across the country have a DADS chapter that hosts monthly meetings to provide “safe forum for sharing, bragging, learning and growing with other fathers who truly understand.” Read more about the chapter meetings here.
Below are also some blogs by dads to give some insight into their perspective:
Eric blogs about life with twins with Down syndrome
Dad Bernard Marrocco writes in Canada’s Globe and Mail of the beautiful journey of life with his daughter Clare who has Down syndrome. He has experienced the uncertainty and fear of receiving a diagnosis, acknowledges the difficulties, and reflects on the fundamental joy of parenting Clare. It is well worth the read, especially for our expectant dads.
Please post any additional resources for our expectant dads in the comments. Expectant dads or experienced dads, please share your questions, concerns, or thoughts.
$10 minimum suggested donation for book download to go toward support and future development. Thank you.
You can make an online donation by credit card, and you will be directed to the University of Kentucky Office of Development. All donations are tax-deductible and receive an acknowledgement letter, which also serves for tax purposes.
Click here to purchase a printed version of "Diagnosis to Delivery" from Woodbine House for $15 or "Your Loved One is Having a Baby with Down Syndrome" for $8.
We provide a free downloadable practical guide for expectant moms, Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome. We also host an interactive blog, which gives expectant parents a place to ask questions, voice concerns, and receive feedback.
We offer support to expectant parents who have received a prenatal Down syndrome diagnosis and are moving forward with their pregnancy. For expectant parents first learning about a diagnosis, please refer to your medical provider and Understanding a Down Syndrome Diagnosis distributed by Lettercase.org.
Please be advised that we are not medical professionals. All decisions about your care should be fully discussed with your medical care provider. This book is a resource and not a substitute for good quality medical care and advice.