Blog archives

Pregnancy Blog Posts

May 15, 2013 in Blog, Emotions, Resources

Leticia Keighley from Australia recently shared with us the beautiful story of her pregnancy on her blog: Embracing Wade. She offers a raw and authentic account of her experience “waiting it out” after receiving a 1:69 chance of having a baby with Down syndrome.

“My pregnancy was definitely a roller coaster of emotions where I questioned my resolve, my decisions and my sanity every time I got a new test result. But right from the beginning, all the way through till now, I had reasons why I didn’t want to test for Down Syndrome. This post is not about what I think everyone should do, it’s about what I did and how it helped me get through the turmoil of prenatal diagnosis. Even though there were ups and downs during those 9 months, by the time Wade was born, I was ready and happy and waiting there with open arms to meet him whether he had DS or not and if any of my thought processes help other women in similar circumstances then its achieved its purpose.”

Below is our list of blogs from other moms who received a prenatal diagnosis and then blogged about the experience during their pregnancy. Those stories are so real and meaningful to expectant parents who can then go on to read the outcome for families. Please add to our list in the comments.

Welcome expectant parents!

November 12, 2010 in Blog, Book, Diagnosis, Emotions

Congratulations on your pregnancy, and welcome to our community. If you have just received a confirmed or suspected diagnosis, you may be feeling very afraid, alone, and overwhelmed. We offer information that can help.

1. A free downloadable Down syndrome pregnancy book.  (Suggested $10 donation.) Buy the printed version HERE (Woodbine House).

2. A blog on our home page.  The current post is always on the front page, and you can also search by categories.

3. Open dialogue on Baby Center’s Down syndrome pregnancy board.  This is a public board not owned by us, but our own Nancy, Missy, and Amy are there on a daily basis to answer questions, provide comfort, and facilitate peer support.

4.  Valuable supplemental information in our Resources section.

We’re here to help you on this journey, prepare you for the immediate future, and give you hope.  Feel free to contact Stephanie privately if you wish at stephanie.meredith@uky.edu.

DownSyndromePregancy.org is administered as part of the National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute (HDI).

People are talking

October 22, 2010 in Blog, Book

We love the chatter we’ve been seeing about our book and website on facebook, e-mail, discussion boards, and blogs.  The more you talk about us, the more likely expectant parents in need of information will find us.  So please, keep talking!  If you would like to see what some people are saying, take a look:

Jennifer Margulis over at the Mothering blog talks about our Stephanie Meredith, both as coauthor of Diagnosis to Delivery and executive director of Lettercase.  She also talks about the new prenatal testing on the horizon.

Special Needs Children Editor Pam Wilson of Bellaonline discusses the new resources for parents, including our website and book (which she calls “outstanding!”) and Stephanie’s booklets available through Lettercase.

One Speech and Language Pathologist at the Thomas Center for Down Syndrome in Cincinnatti, blogs that our book is “absolutely outstanding.”  She goes on to list a variety of people who should read our book, including medical professionals and students.

Nancy McCrea Iannone’s local newspaper published an informational piece on the book and website.

Gillian Marchenko is spreading the word on the Chicago Special Needs Parents Examiner.

And speaking of parents, they are sharing through their blogs.  Here is a sampling:

Our photographer Kelle Hampton (“The individuals who created it passionately put their hearts and souls into something that is beautiful, informative and, I imagine, an incredible guide in navigating the intimidating waters of the first steps of acceptance.”)

Our photographer Conny Wenk (“CONGRATULATIONS, Nancy and Stephanie for putting so much work and effort into this invaluable book!!!)

Bill and Ria (“wonderful, incredible, comprehensive . . ., practical, compassionate, . . . and easy-to-follow”)

Barbara Curtis at Mommy Life

Becca at the Bates Motel (“amazing, long over-due”)

Jess at Raising Joey

Erin at Ski’ing Through Life (with absolutely gorgeous photo of Grady and his dad) (“I wish I had this when I was pregnant.”)

Jennie at A Little Something Extra for Us (“FABULOUS”)

Qadoshyah at Got Down Syndrome (with some extra cute Kelle Hampton and Conny Wenk photos)

Our friends on the other side of the world are also talking.  Keeping Up with Down Syndrome is a blog for the Down syndrome group in New South Wales, Australia.  (Even if many parts are not relevant outside of the U.S., it is still “good, well researched information.”)

Keep the conversation flowing!  And bring some of it to our blog – our expectant parents could benefit from a variety of perspectives.

Down syndrome Blogs