Birth Plans archives

A letter to your doctor

January 1, 2014 in Birth Plans, Comments, Medical Provider

As you prepare for the birth of your baby, you may have heard some personal stories of moms who experienced some awkwardness in the delivery room or later in the hospital. It may be helpful to tell your doctor what kinds of statements make you comfortable or uncomfortable, with suggestions as to how to talk to you after your baby is born. Ask your doctor to share it in advance with the L & D staff, and bring a few copies with you just in case. Experienced moms, did you write letters to your doctors? Expectant moms, would you like to share a draft of your letter and receive some advice?

DownSyndromePregnancy.org has a sample letter from one expectant parent who combined her concerns for the pregnancy, her questions about care and delivery, and her requests for appropriate language into one letter to her doctor.  You may chose to address questions or concerns orally, or write down your thoughts.  Your desires and concerns may differ drastically from our sample.

Twins

January 9, 2013 in Birth Plans, Future, Health Issues, Post-Diagnosis Health, Resources, Siblings

We sometimes have expectant parents awaiting the birth of twins, and one or both babies have Down syndrome.  If you have twins, will you help our expectant parents?  How was your birth plan different?  Did the logistics of a twin birth cause extra complications? Are there any differences in parenting that you see? In what ways is it more difficult?  In what ways is it beneficial?  If you have a blog or website that pertains to twins and Down syndrome, please share.

We will start off suggested resources by mentioning Jen Graf Groneberg’s Roadmap to Holland.  Jen gave birth to twin boys, one with Down syndrome, and wrote of her early experiences.

Another resource is a blog by Eric Waksmunski, dad to twin boys with Down syndrome.

Another guest post by Vicki Vila on Amy Julia Becker’s “Thin Places” blog gives a unique and insightful perspective about fraternal twins where one has Down syndrome and the other does not. Vicki Vila’s blog can be found at www.modernmessy.wordpress.com.

Let’s hear some more resources, and any personal experience.

Vicki Vila

Preparing for a possible NICU stay

August 27, 2012 in Birth Plans, Health Issues

Expectant parents preparing for the birth of a baby with Down syndrome will read information in our book and other on-line resources discussing the possibility of a NICU stay.  Mom Adina over at Baby Center conducted an informal poll of moms which found the following:

32.4 percent of babies went home with mom

24.3 percent spent less than 2 weeks in NICU

19.8 percent spent 2 to 4 weeks in NICU

9 percent spent 4 to 6 weeks in NICU

14.4 percent spent over 6 weeks in NICU

Adina’s poll shows over half of the babies with Down syndrome had no NICU stay or only a short NICU stay.  But a large percentage do have a stay over 2 weeks.   So while many babies will not have a NICU stay, practically speaking it is a very good idea to prepare for the possibility.

Experienced moms, did your baby have a NICU stay?  If so, what advice do you have for expectant moms who wish to prepare for that possibility?

(Original post January 7, 2011)

Organization & Preparedness 101

March 23, 2012 in Birth Plans, Future, Health Issues, Medical Provider, Post-Diagnosis Health

Pregnancy post-diagnosis is often a blur of medical appointments, especially late in pregnancy.  Expectant parents receiving co-care from several health care professionals may see multiple doctors in an obstetrics practice and multiple doctors in a maternal-fetal medicine practice.  There may be a lists of tests, lists of questions, scraps of paper with phone numbers.  We highly recommend making an organizational plan to keep track of all of your medical information during pregnancy.  Parents should purchase a a binder/ notebook to keep track of dates, medications, doctors, tests, results, questions, and answers. Include your birth plan as well.  Ask your doctors for copies of your medical records, especially the karyotype, which shows the baby’s chromosome count.

You may also want to start a binder for the baby, starting with the karyotype and a summary of the pregnancy.  Keep track of all medical personnel, tests, etc. connected with the baby in this binder.  Some items which may be helpful to start are the following:

The Down Syndrome Growth Charts

The Down Syndrome Health Checklist
(The health guidelines have been recently updated – download HERE)

The Down Syndrome Developmental Charts

Blogger Ria provides amazing advice on creating an organizational system, with extremely helpful links and step-by-step instructions.

(original post March of 2011)

Preparation

January 18, 2012 in Birth Plans, Breastfeeding, Friends and Family, Health Issues, Medical Provider, Support

Many of our expectant parents agreed to diagnostic testing in order to “prepare” for having a child with Down syndrome.  Yet post-diagnosis they may not be sure exactly what they should be doing to prepare.  For those of you who had a prenatal diagnosis, share what steps you took.  For those of you who had higher chances but skipped the amnio, were there things that you did to prepare “just in case”? For all of you, are there things you wish you had done? Are there things you wish you had not done?

(Original post December 2, 2010)

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