The book offers support to families who have experienced a miscarriage or lost a baby or child with Down syndrome by covering topics like coping with grief; dealing with comments and the practicalities of loss; helping siblings cope; and finding resources. This book also features the stories and photos of families who have experienced loss and who provide their personal insight.
“This booklet provides an immense resource for families as they cope with the loss of their child. I take great comfort in knowing that it will reduce stress for future grieving families by guiding them through this difficult experience.”
Desiree Hokeness, Landon’s Mom
“An empathic resource for families of children with Down syndrome who experience the loss of their pregnancy or child. Saying “goodbye” too soon is never easy, but with this well-orchestrated book addressing loss, grief and the practicalities of the situation, one can feel the comfort and hug coming from the text.”
Mary-Frances Garber, MS, CGC, Genetic Counselor at Supportive Genetic Counseling and Bereavement Support Services
Coping with Loss: Down Syndrome is available online for free. Please share a link to downsyndromepregnany.org so that others can access our resources, but do not upload the books to your own website.
If you find Coping with Loss: Down Syndrome useful, please consider making a donation to Down Syndrome Pregnancy so we can continue to maintain and create products that support other parents.
Purchase printed copies of Coping with Loss for $10 each.