Archive for November, 2012

Thanks to You

November 19, 2012 in Emotions, Resources, Support

We also want to express a sincere thanks to all of the experienced parents, medical and industry professionals, and community leaders who offer such valuable comments on our blog to help bring clarity and insight to expectant parents. We appreciate you and want to give particular thanks to Megan Landmeier, one of the first expectant moms to use Down Syndrome Pregnancy, for her kind words at My Stubborn Little Miss.

Giving Thanks by Sharing

November 19, 2012 in Resources

As Thanksgiving nears, we want to ask what resources you have found most helpful on your journey as a new or expectant parent. What are you thankful for? What resources did you appreciate so much that you want to share with others? Please share those resources with us — whether it was a book, a conference, a blog, a video, a forum, or something else entirely. Happy Thanksgiving!

Social Media Survey Research

November 8, 2012 in Research, Support

My name is Ginger Edwardsen and I am currently a second year student in genetic counseling program at the University of South Carolina School of Medicine.

Down Syndrome Pregnancy has graciously allowed me to introduce myself to your community and explain my current research.

As a part of my Masters’ thesis, I am conducting research on the use of social media by families with a child diagnosed with Down syndrome.

Like many of you, I use social media in my everyday life and find it to be an integral part of the online community today. I am interested in seeing how families such as you use social media to gather information and support about Down syndrome.

I would like to invite you to participate in an online survey about your use of social media. You are being asked to participate in this study because you have a family member or are a caregiver of an individual with Down syndrome. This survey should take around 10-15 minutes to complete. At the end of the survey, you will be given the option to provide your contact information for a follow-up phone interview at your convenience. I would love the opportunity to talk with you briefly about the specific ways in which you find social media helpful regarding your family member with Down syndrome.

To complete this survey please click the link below:
http://www.surveymonkey.com/s/socialmediads

Your time and involvement would be greatly appreciated. If you would like more information or have any questions please feel free to contact me or my faculty advisor with the contact information below.

If you have any questions about your rights as a research participant, you may contact the Office of Research Compliance at the University of South Carolina at (803) 777-7095.

I would like to thank Down Syndrome Pregnancy for allowing me to share my research with you today and I would like to thank you all in advance for your consideration.

Sincerely,

Ginger Edwardsen
Genetic Counseling Intern
University of South Carolina School of Medicine
Department of Clinical Genetics & Molecular Medicine
Two Medical Park, Suite 103
Columbia, SC 29203
ginger.edwardsen@uscmed.sc.edu
919-576-0575

Andrea Sellers
Certified Genetic Counselor
Assistant Professor
University of South Carolina School of Medicine
Department of Clinical Genetics & Molecular Medicine
Two Medical Park, Suite 103
Columbia, SC 29203
asellers@uscmed.sc.edu

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