Archive for October, 2012

Down Syndrome Pregnancy News and Gratitude

October 31, 2012 in Blog, News

Stephanie Meredith (left), Nancy Iannone (middle), and Heather Trammell (right)

For the past two years, Down Syndrome Pregnancy has operated as an independent 501(c)(3) charity serving expectant parents nationwide under the wonderful guidance of Nancy McCrea Iannone as the Executive Director. Nancy has been unfailingly generous, kind, and dedicated in this work—along with the amazing Down Syndrome Pregnancy Board of Trustees: Melissa Kline Skavlem, Amy Geoffrey, Sarah Hartway, Heather Trammell, Kelle Hampton, and Lisa Cape Lilienthal. Under their leadership, this work has grown to support over 75,000 online visitors in the past two years, and nearly 3300 copies of the booklet, “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome,” have been distributed nationwide.

Given the success and responsibility of this effort, Down Syndrome Pregnancy is now being absorbed by the University of Kentucky’s Human Development Institute (HDI), which currently administers both Brighter Tomorrows (an online resource for new and expectant parents) and the Kennedy Foundation’s nationally recommended diagnosis booklet, “Understanding a Down Syndrome Diagnosis.” Together, all of these resources will complement each other to provide comprehensive support for new and expectant parents nationwide.

Missy, Nancy, and Amy will continue to moderate the BabyCenter Down Syndrome Pregnancy board, and they will continue to provide guidance and consultation for the Down Syndrome Pregnancy website and resources. However, the program will now have the additional support of HDI as a distinguished University Center for Excellence in Developmental Disabilities, and the website will be managed by Stephanie Meredith, the Medical Outreach Director at HDI, who has also been part of Down Syndrome Pregnancy from the beginning as the co-author with Nancy of “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome.”

Please take a moment to share what Down Syndrome Pregnancy has meant to you over the past two years, and please also consider making a donation today so that we can continue growing the program to help more and more expectant parents.

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