Archive for February, 2012

Booklet “Your Loved One is Having a Baby with Down Syndrome” now available

February 10, 2012 in Friends and Family


Our booklet “Your Loved One is Having a Baby with Down Syndrome” is now available for free download. We hope this booklet will be helpful to all people who know someone who is awaiting the birth of a baby with Down syndrome. Expectant parents, we hope this will be useful to you as you approach your friends, your parents, and your other loved ones about the news of your child’s diagnosis.

Thank you so much to the wonderful team that made this possible, including the authors Nancy McCrea Iannone, Stephanie Meredith, and Amy Geoffroy, as well as contributors Beverly Beckham and Herbert D. Hinkle, Esq. Dr. Brian Skotko was kind enough to provide medical review and suggest edits. Dr. Maria Iannone suggested significant changes to the original draft of the booklet, while Richard Kline, Missy Skavlem, Heather Trammell, and Sarah Hartway all provided editorial suggestions. Vincent Iannone spent many hours producing the booklet, using Justin Meredith’s original design work as inspiration. Gracias to Mary Dressel and Ana Lorena Beltran for translating the Spanish language resources page. Thank you all.

Because a picture is worth a thousand words, thank you Kelle Hampton for asking readers for pictures. We hope to use many of these photos in future publications and blog posts, but in this booklet we see gorgeous photos from a collection of her readers. Thank you so much all parents and relatives who sent in beautiful photos. Thank you also to Kelle Hampton Photography, Conny Wenk Photography, and Corie Green Photography.

Lisa Lilienthal will be helping with publicity so thank you Lisa as well. Although it may take a month or so to produce the quality printed version, Woodbine House has once again volunteered their distribution services. Thanks to all of you. You have each given a part of yourselves to help future families.

Download the booklet “Your Loved One is Having a Baby with Down Syndrome:” HERE.

The Shape of the Eye (book review)

February 8, 2012 in Dads, Diagnosis, Emotions, Future, Health Issues, Resources

The Shape of the Eye by George Estreich is one of my favorite books and I recommend it highly for those who have a loved one with Down syndrome (or will soon!) and for anyone who loves books. I wanted to have written a beautiful book review worthy of his work, but I find that the time eludes me. However, Lisa Morguess has written a lovely review for you to enjoy on her blog Turn the Page, and as a bonus has an interview with the author on her personal blog Life as I Know It. Read Lisa’s review and George’s interview, buy the book and devour it, and when you love it as much as we do, vote for The Shape of the Eye in the Oregon Creative Non-Fiction category.

Lisa Morguess’ review: HERE
Lisa’s interview with George Estreich: HERE
Buy the Shape of the Eye: HERE

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