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Archive for January, 2012

What will baby need? (It’s a Baby Shower!)

January 30, 2012 in Friends and Family, Future

Katie Ryder with her grandmother Lona Kewley

Experienced moms, help our expectant parents with their baby registry! What items did you use during infancy that will be a big help for new parents of a baby with Down syndrome? Expectant moms, ask follow-up questions, or talk about the supplies you have already.

Lets get the list started with a few of our “must have” items:

Two products for congestion are an absolute must, the NoseFrida, otherwise known as the snot sucker (I know, it looks gross, but trust us), and saline mist. 

And since research shows the benefits of sign language for our kids, put Signing Time videos on your list. The videos are fun, the songs are catchy, and your other kids will enjoy them too.

Finally, every parent of a child with Down syndrome should have a copy of Will Schermerhorn’s DVD “Down Syndrome – The First 18 Months.”  Check out Will’s website to order the film.

Let’s add to the list!

originally posted November 16, 2010.

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  We provide a free downloadable practical guide for expectant moms, Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome. We also host an interactive blog, which gives expectant parents a place to ask questions, voice concerns, and receive feedback.
  
  We offer support to expectant parents who have received a prenatal Down syndrome diagnosis and are moving forward with their pregnancy. For expectant parents first learning about a diagnosis, please refer to your medical provider and Understanding a Down Syndrome Diagnosis distributed by Lettercase.org.
  
  Please be advised that we are not medical professionals. All decisions about your care should be fully discussed with your medical care provider. This book is a resource and not a substitute for good quality medical care and advice.