Archive for March, 2011

Happy World Down Syndrome Day

March 21, 2011 in Emotions, Events, News

March 21st is World Down Syndrome Day.  On this the 21st day of the third month (3/21, trisomy 21), we celebrate the lives of our loved ones with Down syndrome. We know pregnancy post-diagnosis can be an emotional time, but today is the day to find the joy and celebration for the member of your family about to join you. I love Conny Wenk’s photos of Julia and Peter, who were so excited as they waited for their little one with Down syndrome to be born. You can see the love and the laughter above.

The internet is abuzz with celebration – video clips, exclamations, excitement.  I will search around today and add to this post the interesting and inspiring snippets I find. Share here if I miss any! 

Of course we think a great way to celebrate would be to tell our expectant parents here or on our discussion board how much your child means to you – our families find so much hope from your stories.  Also, a donation will help us in our efforts to help expectant families.  If there is a perfect day to donate, today would be that day!

A welcome from local groups

March 14, 2011 in Resources, Support

Group leaders, please share with our expectant parents some information about your group, and contact information so that our expectant moms know whom to contact.  What kind of supports or resources do you have for expectant parents? Do you have any events coming up? Let’s have a shout out from our favorite groups! Let our expectant parents know they are a part of our community, not just in cyberspace but in real life too.

Words that hurt: Asking family and friends to use kinder words

March 9, 2011 in Comments, Friends and Family

Many expectant parents become very sensitive to words they hear, including slang such as the use of the R-word. Many parents are hurt and unsure of how to handle this. If they confront their loved ones, things can get very awkward. If they say nothing, they may feel disappointed in themselves for not sticking up for their child. This is new social territory for you, and it can be very confusing. DownSyndromePregnancy.org has a sample e-mail for you to copy and edit to suit your own circumstances. For our parents who have dealt with this situation, will you share your experiences?

(This post originally appeared on October 5, 2010, but it is worth a revisit, especially since last week highlighted the Special Olympics’ efforts to “Spread the Word to End the Word.”)

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