Archive for February, 2011

The journey: one size does not fit all

February 7, 2011 in Diagnosis, Emotions, Resources, Support

In the five years we have worked with expectant parents, we have seen many similarities in the experiences of those in post-diagnosis pregnancy.  Reading of these experiences allows expectant parents to know they are not alone.  We have been where you are.  We understand.  However, this population is very diverse in terms of life experiences, beliefs, personalities, and circumstances. Expectant parents do not all react the same way, nor do they all need the same form of support.

There are many avenues of support available, many ways of gaining confidence, many ways to be comforted and empowered.  Which best fit your personality?  Which best met your needs?  Local groups, therapy, on-line support?   Books on Down syndrome, meeting families, prayer?  Scientific research, personal stories, a specific resource?

Please share with us the combination of supports that best worked for you.

Blogs: Information and Inspiration

February 2, 2011 in Blog, Resources, Support

To all of our expectant parents, we present Missy’s blog roll.  Beyond just a list of Down syndrome-related blogs, Missy has explained each blog in a nutshell.  Our expectant parents can peruse this list, looking for bloggers who share their beliefs, cultures, interests, or whose children have experienced the ancillary medical issues discovered in an expectant parent’s unborn baby. If you see a blogger who has received a prenatal diagnosis, often you can search back through blog posts to see what they were thinking at the same stage of gestation as you. 

This may inspire you to blog as well.  Often moms are feeling so raw that they don’t want to share, but sometimes writing and sharing can be a very cathartic experience, and may in turn help another parent.  Happy reading!

Added note: Missy will have a larger, beyond Baby Center blog list to which we will link.  If you have a blog, feel free to put the link here  on a comment, with a description (similar to the descriptions on the list), and we will put it on the list.  Thanks!

Down syndrome Blogs