Archive for October, 2010

People are talking

October 22, 2010 in Blog, Book

We love the chatter we’ve been seeing about our book and website on facebook, e-mail, discussion boards, and blogs.  The more you talk about us, the more likely expectant parents in need of information will find us.  So please, keep talking!  If you would like to see what some people are saying, take a look:

Jennifer Margulis over at the Mothering blog talks about our Stephanie Meredith, both as coauthor of Diagnosis to Delivery and executive director of Lettercase.  She also talks about the new prenatal testing on the horizon.

Special Needs Children Editor Pam Wilson of Bellaonline discusses the new resources for parents, including our website and book (which she calls “outstanding!”) and Stephanie’s booklets available through Lettercase.

One Speech and Language Pathologist at the Thomas Center for Down Syndrome in Cincinnatti, blogs that our book is “absolutely outstanding.”  She goes on to list a variety of people who should read our book, including medical professionals and students.

Nancy McCrea Iannone’s local newspaper published an informational piece on the book and website.

Gillian Marchenko is spreading the word on the Chicago Special Needs Parents Examiner.

And speaking of parents, they are sharing through their blogs.  Here is a sampling:

Our photographer Kelle Hampton (“The individuals who created it passionately put their hearts and souls into something that is beautiful, informative and, I imagine, an incredible guide in navigating the intimidating waters of the first steps of acceptance.”)

Our photographer Conny Wenk (“CONGRATULATIONS, Nancy and Stephanie for putting so much work and effort into this invaluable book!!!)

Bill and Ria (“wonderful, incredible, comprehensive . . ., practical, compassionate, . . . and easy-to-follow”)

Barbara Curtis at Mommy Life

Becca at the Bates Motel (“amazing, long over-due”)

Jess at Raising Joey

Erin at Ski’ing Through Life (with absolutely gorgeous photo of Grady and his dad) (“I wish I had this when I was pregnant.”)

Jennie at A Little Something Extra for Us (“FABULOUS”)

Qadoshyah at Got Down Syndrome (with some extra cute Kelle Hampton and Conny Wenk photos)

Our friends on the other side of the world are also talking.  Keeping Up with Down Syndrome is a blog for the Down syndrome group in New South Wales, Australia.  (Even if many parts are not relevant outside of the U.S., it is still “good, well researched information.”)

Keep the conversation flowing!  And bring some of it to our blog – our expectant parents could benefit from a variety of perspectives.

Some kind words from our favorite writers

October 8, 2010 in Book

We have received so many e-mails, and we truly appreciate every message. We would like to share those that come from mothers who brought personal stories about people with Down syndrome to new parents everywhere. 

“I wish this resource had been available when my son, Thomas, arrived five years ago. It provides exactly what I wished for but could not find: informed, practical, and compassionate guidance in vital matters regarding the well-being of a family newly touched by Down syndrome. With warmth and knowledge born of experience, the authors shed light into the shadowy time when the difficulties of parenting a child with special needs loom large, and the rewards have not yet been discovered. ”

– Kathryn Lynard Soper, author of:

Gifts, Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

Gifts 2, How People with Down Syndrome Enrich the World

The Year My Son and I Were Born

“What a treat it was to read Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome.  I found myself nodding my head in agreement, and laughing, and smiling, and yes, there were even some tears, because it’s that kind of book.  A book that inspires all sorts of emotions, and most importantly, gives help and hope in full measure.  I love so many things about it:  I love the clear, straightforward language; I love the book’s scope (a perfect blend of just enough insight, without being overwhelming); I love the self-talk we all have (what we say out loud, versus what we are thinking in our heads!); I love the resources you’ve included, and I especially love the photos, because sometimes, a picture is worth even more than a thousand words.

-Jennifer Graf Groneberg, author of Road Map to Holland:  How I Found My Way Through My Son’s First Two Years with Down Syndrome

Down syndrome Blogs